Why Is It Important?
Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.
Despite the fact that CHD affects approximately 1.8 millions families in the U.S., a relatively small amount of funding is currently available for parent/patient educational services, research, and support.
By sharing our experiences and providing information, we hope to raise public awareness about conditions that affect approximately 40,000 babies each year in the United States alone.
It is our sincere hope that efforts to educate the public will result in improved early diagnosis, additional funding for support and educational services, scientific research, and access to quality of care for our children and adults.
Frequently Asked Questions about Congenital Heart Disease
C.H.I.N.- Congenital Heart Information Nework here
Immunization Action Coalition (IAC)
An online resource so comprehensive that it lists supplies a to set up a clinic.
The Immunization Action Coalition (IAC) works to increase immunization rates and prevent disease by creating and distributing educational materials for health professionals and the public that enhance the delivery of safe and effective immunization services. The Coalition also facilitates communication about the safety, efficacy, and use of vaccines within the broad immunization community of patients, parents, health care organizations, and government health agencies.
For more than a decade, the Centers for Disease Control and Prevention (CDC) has worked in concert with and provided financial support to IAC for the purpose of educating health professionals about U.S. vaccine recommendations. CDC recognized IAC’s accomplishments in 1997 by awarding it the prestigious Partners in Public Health Award for efforts “instrumental in achieving high levels of routine infant hepatitis B immunization.”
Physicians, nurses, and other healthcare professionals at every level of the immunization community, including both the public and private sectors, rely on many of the following projects in their daily work to increase immunization rates across the lifespan.
At the bottom of the About Us page is a link to register to see their Form 990 (financial information- or where their money goes)